• August 7, 2014 /  Uncategorized

    Hope you haven’t been worrying about the lack of entries. Have to keep this very short but to summarise:

    Felt ok the first couple of days out of hospital. Then went to Leicester for appt and was exhausted for the days after that – profound fatigue though this is normal.

    On Monday we had another long day at Leicester and my consultant said I should be ok at home. However, the next morning I had a temperature so all the way back to Leicester. Admitted after a long day of waiting to a single side room of the haem ward. But today I was moved into a 4 bay ward to day. One lady here is having hallucinations and thinks the nurses are attacking her.

    They aren’t sure of my infection but my c.diff seems to reared up again.

    Upshot is that I’ll be here a few more days at least.

    Am still being told this is all par for the course and I’m doing OK.

    Will be back in touch with any further news.

    Posted by admin @ 8:34 pm

6 Comments to Back in hospital

  • Sarah you inspire me. I lost my Dad to myeloma last month. He was diagnosed in 2011, it is so sad for our entire family. He lived in Jamaica and the hospital system sometimes delays where blood/platelet administering is concerned; there is a wait-list. In the end he caught pneumonia because he wasn’t isolated.

    I wish you all the best! Keep writing. X

  • Come on Sarah. We are going to do it. I’m day T+21 and am exhausted too. Came home at T=14 and only left house to visit dad and get blood draw I don’t think I’m dehydrated cause I’m peeing like a race horse. To be honest. I think I’m resting too much. I sometimes have to sit on the ground if I get up too quick.

    Come on Sarah, we are going to do this. we are over the tough stuff (except this is one of two ASCT I’m scheduled to have. ouch)

  • Hi Sarah, I wanted to give you time to settle at home before a rang but now see you are in Leicester for a few extra days.
    I hope they have got to the bottom of the infection and you are feeling stronger.
    The doctors sound pleased with your progress, although it must seem 2 steps forward and 3 back at the moment. I feel they have been honest about your progress to date so I feel encouraged that this hiccup is normal and shortly you’ll be travelling back home again.
    As always our thoughts remain with you. Much love Denyse and Tony xx

  • Hi Sarah.So sorry to hear you have an infection but the docs seem positive so keep your pecker up.Think of you often.Tessa

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  • Hi Sarah,
    Sorry I haven’t been in touch for so long. I really admire the way you manage to write about all the stuff that you have gone through in such an upbeat manner.
    Your site must be so useful for others going through the same thing and for their families.
    Thinking of you all and hope things improve for you soon.

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