I have decided to keep a blog, because though I didn’t want to make a ‘misery memoir’ of my illness in the first few months, updating people on my progress has become quite time-consuming, even using cut and paste! If I have time I may add in bits and pieces of interest on other issues: books, links, thoughts etc. Currently I have only just started to get to grips with blogging, so it looks a mess and is disorganised. Hopefully as I get to grips with the package the site will improve, but please bear with me!
My name is Sarah, I’m 54 with a husband Bob and two children, Tom (21) and Rosie (18). I am a teacher, an active trades unionist and involved in left wing politics. I am currently President of the local NUT branch and Secretary of Trades Council. Although I can’t attend meetings any more, I’m trying to work by email as a general information ‘hub’ and I still try to do work associated with my political beliefs.
This section of my blog is just to inform people about myeloma, and for interest to anyone who wants to compare their experiences with mine. I’m not planning on a regular diary as there’s nothing more boring than lists of symptoms/side effects day by day, so I’ll pop in the odd update as necessary. Please, if you suffer from myeloma – remember you may/will be treated with a different regime because that’s more appropriate to you or because time has gone past and treatments, procedures and drugs change. Also your symptoms may be more or less severe or different from mine! So always consult with your own team about your treatment.